September 8, 2013 at 4:22 pm #279
This is not confusing. Bloodletting reduced my symptoms, particularly the symptoms i think are due to PR. Bloodletting wasmdone over thencourse of 2 months, and im going to do more next week.September 8, 2013 at 4:26 pm #280
I suspect that PR is not a problem for me anymore, but i cannot be sure of that. I have a positive pcr test for pr from fry labs. I suspect that my remaining problems are due to gut dysbiosis only. But like i said i cannot be sure of that.September 13, 2013 at 5:19 am #281
Thank you for the clarification. I miss understood the timeline of events.
Does probiotics help with the dysbiosis? How is the bloodletting coming along?
There are a lot of desperate people out there trying to find a cure for their ailment ( I know I was one of them) Does it concern you that people may see your blog on bloodletting and try it on their own?September 13, 2013 at 5:44 am #282
Yes probiotics does help with dysbiosis. But I find that lactobacteria and bifido bactera are not helpful. Only soil based microorganisms, saccharomyces boulardii and some other strains are helpful (e.g. clostridium butyricum, bacillus mesentericus, streptococcus faecalis, bacillus subtilis).
No that does not concern me. I am responsible only for the information I provide. I am not responsible for what other people do.
If others want to try bloodletting, I say go for it. Let me know the results. Just be smart about it-use aseptic technique, learn how to do it properly and safely, and dont remove excessive amounts of blood. I think its quite safe when done with reasonable precautions.September 13, 2013 at 5:55 am #283
Very interesting information on the probiotics, thank you. I agree people need to be responsible for their actions! Though I do know what desperation feels like as I am sure you do too!
Are you aware that Dr. Fry has discovered 6 genetically different protozoa within the Protomyxzoa Rheumatic?September 13, 2013 at 6:06 am #284
6 different strains? No I was not aware, but that is to be expected I suppose. Where did you get this information? Did you speak with someone at his lab?September 13, 2013 at 6:11 am #285
At my last appointment with him he told me. Just to be clear he made it very clear it is 6 “genetically” different protozoa. He was very excited about this discovery as you can imagine.September 13, 2013 at 6:16 am #286
Meh. Whatever. That information is not particularly useful.
Dr Fry should investigate the effect of iron restriction and iron reduction on PR infection. He also needs to conduct antibiotic sensitivity testing, but I understand his lab is working on that.
The main thing that Dr Fry needs to do is publish SOMETHING. Its pretty ridiculous that he is waiting this long.September 21, 2013 at 7:30 pm #287
I find it very interesting that you find this information useless!?
Discovering 6 different genetic Protomyxzoa Rheumatic is HUGE. The benefits of this discovery is obvious.
I too wish he would at least do a Peer Group, but taking into consideration the magnitude of his discovery and the many, many aspects of healthcare and pharmaceutical companies that would be turned on their heads it is understandable why he needs to make sure every T is crossed and every I is dotted (in every language).September 28, 2013 at 1:48 am #288nefferdunMember
I just found your forum again and I am glad I came across this topic.
I had forgotten how iron feeds protozoa pathogens. I have high ferritin levels and tried to have phlebotomy done over a year ago, when I found out, but no doctor would do it. I took IP6 for awhile and then abandoned it on the shelf. If you have Irish ancestry, like I do, you could possibly have a genetic condition causing you to overload iron, called hemochromatosis. One of the methyl cycle mutations can cause you to overload iron too. Iron overloading creates the perfect storm for pathogens to thrive – and I forgot about it. PR makes a sieve of my mind.
The vegan diet would help but there is some iron in beans and lentils. The foods highest in iron are meat, mollusks, egg yolks, green leafy vegetables, artichokes and dried fruit like raisons. You increase the absorption of iron when with vitamin C – taken together. No wonder people on a paleo diet drinking green smoothies are not getting into remission.
Luckily, because of my CBS mutation, I am not supposed to have foods with sulfur, which include meat and the green leafy vegetables like kale and spinach or dried fruit like raisons. If you want to get into remission (and stay there) you need to investigate EVERYTHING.
I got into remission – at least I was feeling pretty well for the most part – following the low fat vegan diet along with about 3 months of taking stromectol. I messed up on the diet and began to deteriorate so I am back on it as faithfully as I can. It is very hard sometimes. I take stromectol now and then.
I did not know there were 6 variants. I heard there are variants and they respond to different therapies. That is why it is so important. Some people are using just stromectol (ivermectin) and others are also taking Alinia. Some are on anti-malarial drugs like malarone. I thought stromectol worked so well for me that everyone else was missing the boat. Turns out, they don’t have the same variant.
Hope you continue to get better and we all find our way out of this.
BevNovember 4, 2013 at 5:15 pm #295CharlesMember
Have you guys thought about less iron specific chelators like DMSA or EDTA? They also break up biofilms by removing the metals but dont have a really high affinity for iron. But DMSA is cheap and used orally and I guess you could work up to higher doses. EDTA is harder because oral is poorly absorbed and so you need an IV treatment or suppository.
Pure iron chelators seems to be impossible to get/harder on the body.February 27, 2015 at 3:16 pm #324JTMember
Just wanted to add that Rutin and EDTA are fairly effective chelators of iron (search Garry Gordon on the subject). Bloodletting may not be the only option. May be worth looking into for some.February 27, 2015 at 3:27 pm #325JTMember
Malic acid and artemisinin should be thrown in there as well.
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