Anyone try prolonged deferiprone or liposomal EDTA? Both bind to intrcellular iron (EDTA somewhat less) and this disease seems ravenous for iron. Stealing iron from it and excess iron from your body seems like an ideal strategy.

Does anyone have advice on how/where to order deferiprone online? Its very hard to get. Someone mentioned a chinese chemical supplier on another thread but I am unsure on what to do…feel free to PM me or just reply.