…I began the vegan(ish) low fat diet the same time I began the ivermectin. I have not had any red meat in 5 years but no meat at all in over a year, since starting the PR treatment. It is hard for me to not eat any eggs at all so I eat some egg whites. I also eat bread as the gluten does not seem to bother me, and some dairy. … The low fat diet is critical. Whenever I try to incorporate nuts or seeds or any other healthy but high fat foods, I get a return of symptoms. I know fat=symptoms is related and wish I could believe otherwise because the diet is very restrictive. I try to keep my fat grams to 15 a day but often it is 20 and sometimes as much as 25. I feel the difference, believe me. I was off stromectol/ivermectin for about 6 months doing well on just the diet. The only symptom I had was dry eyes which have always been with me since my tick bite in 2006. I am not sure if it is actually caused by PR or maybe another pathogen. I lapsed in the diet and began to slide so I started pulsing stromectol again. I just take it now and then. The returning symptoms I have are stiffness in the morning and headaches – some dizziness now and then. I know when PR is emerging because my voice will go hoarse periodically. I have to manage this disease because I can’t cure it. If any of you have not done the diet, you are missing out on feeling so much better. It is a pain but worth it.
Hi Nefferdun, I know this is an old thread, so not sure you’ll see my reply here…
I’m also curious about the value of the low-fat diet. I see other explanations as to it’s efficacy or lack thereof, based on the overall diet people end up doing, and/or things they’re excluding and having problems with.
In the case of nuts, to me it seems unlikely that it’s the fat in the nuts that are the source of problems. Nuts are high in arginine – I believe Dr. Fry states that the PR love arginine and to avoid it. It could also be the seed proteins which can cause problems for those who have immune issues, and/or antinutrients notably phytic acid – depending on how they are prepared (e.g. if they aren’t soaked or sprouted to remove the antinutrients).
I’m curious if you’ve tried other fats and specifically what reactions you have.
In general I’m curious about this topic and wonder how to get feedback from a greater number of people who are attempting to eradicate PR via this very low fat vegan diet. My sense is there are other “explanations” for those who have good results, and I also get the impression that some people end up struggling with essential fatty acid deficiencies and imbalances.
Nefferdun, perhaps by this time you have further feedback as to how you’ve been doing with diet? Oops – I see you very recently gave an update… sorry I missed that before I originally submitted this post. Although it’s kind of unclear whether you’ve been doing the low fat diet all this time – and if it’s just recently that you added the fat binders (sorry if I’m missing something you already said – I find the small light-colored text on this site is a little hard on my eyes!).
If you have been doing the low-fat diet all this time – I’m even more curious since apparently your blood shows substantial biofilm still? Although wondering if this is a typo: ” They said I had substantial biofilm, stippling on my RBC and organisms showing motility”. Should this read *SLOWING* motility? I think that makes more sense in the context of the sentence…
Well, sorry to hear about your unhelpful experience with Dr. Fry. I guess I should go re-read your other post about the binders… The other question that arises from your follow up is – how long have you been doing the lipo EDTA? If it’s just recent, that might also correlate with your report of substantial biofilm. But if you’ve been using it for awhile, we might hope that this has been effective on the biofilms, correct?
Anyways – I’m just curious… And wish there were more feedback from PR patients following the low-fat diet and these different protocols… Does anyone here have suggestions as to how to collect more patient feedback – this forum or elsewhere?
TIA
-Azya
