Forum Replies Created
February 27, 2016 at 7:32 am #353
Dysbiosis protocol has been updated.
I now emphasize the supplements, as these are much easier to do than growing live cultures. Growing the cultures can be complicated, because it requires a lot of ingredients.
Conventional probiotics might be effective enough when combined with the supplements.
I have some nutrient blend for the cultures, and am willing to provide some to people that want to try making the live cultures. You can message me if interested.
December 26, 2015 at 5:20 am #335
- This reply was modified 5 years, 8 months ago by Dan S.
I tried miltefosine and I found that it was not helpful. However, I also now doubt my protomyxzoa diagnosis. I suspect that my protomyxzoa test may have been a false positive. it is known that false positives (over sensitivity) can be a problem with PCR tests, since they can be so incredibly sensitive. A tiny amount of contamination can produce a positive result.
I purchased miltefosine from a chemical supplier in China. Its sketchy, but there is no other way to obtain it.September 13, 2013 at 6:16 am #286
Meh. Whatever. That information is not particularly useful.
Dr Fry should investigate the effect of iron restriction and iron reduction on PR infection. He also needs to conduct antibiotic sensitivity testing, but I understand his lab is working on that.
The main thing that Dr Fry needs to do is publish SOMETHING. Its pretty ridiculous that he is waiting this long.September 13, 2013 at 6:06 am #284
6 different strains? No I was not aware, but that is to be expected I suppose. Where did you get this information? Did you speak with someone at his lab?September 13, 2013 at 5:44 am #282
Yes probiotics does help with dysbiosis. But I find that lactobacteria and bifido bactera are not helpful. Only soil based microorganisms, saccharomyces boulardii and some other strains are helpful (e.g. clostridium butyricum, bacillus mesentericus, streptococcus faecalis, bacillus subtilis).
No that does not concern me. I am responsible only for the information I provide. I am not responsible for what other people do.
If others want to try bloodletting, I say go for it. Let me know the results. Just be smart about it-use aseptic technique, learn how to do it properly and safely, and dont remove excessive amounts of blood. I think its quite safe when done with reasonable precautions.September 8, 2013 at 4:26 pm #280
I suspect that PR is not a problem for me anymore, but i cannot be sure of that. I have a positive pcr test for pr from fry labs. I suspect that my remaining problems are due to gut dysbiosis only. But like i said i cannot be sure of that.September 8, 2013 at 4:22 pm #279
This is not confusing. Bloodletting reduced my symptoms, particularly the symptoms i think are due to PR. Bloodletting wasmdone over thencourse of 2 months, and im going to do more next week.September 7, 2013 at 11:20 pm #276
Yes i have passed this along to dr fry, indirectly. I emailed the papers to his office. They said they were completely unaware of the iron issue. I asked dr fry to cal me to discuss, but he neVer did. I dont know if dr fry even received the papers personally.September 7, 2013 at 11:18 pm #275
My infectious disease specialist has started recommending a low iron diet for his patients, especially the ones with PR. I think a low iron diet is not enough. The human body has no mechanism aside from bleeding to remove iron. One could take phytate To remove iron, but thats slow and will take forever. May take years. Bleeding is the way to go.September 7, 2013 at 11:15 pm #274
I just do it at home with an 18ga catheter, tourniquet and tubing. It requires someone to do the venipuncture, though. Maybe i will put a video on youtube showing exactly how to do it. If you get the puncture right, it only takes about 15 minutes to drain 500ml or more. Im going to do it again prob next week, and that will bring me up to about 3200ml in the last couple months. I have no symptoms of anemia yet, but i need to get my iron numbers again. Though my primary doc cannot do or prescribe the bloodletting she knows what i am doing and is facilitating it with the laboratory at her office. She just wants me to get my blood iron numbers checked regularly. The most important one is the hemoglobin number. I started at 13.8. Normal is 12 and above. Severe anemia is about 8. Thats too low as it will inhibit immune function. Im going to guess that maybe 10-11 range may be ideal for inhibiting PR.September 7, 2013 at 11:08 pm #273
Both my primary care dr and infectious disease specialist are on board with the bloodletting/iron reduction. They have seen the papers. However, they cannot facilitate the bloodlettin they would be at gret professional risk. The medical profession is on a constant witch hunt for anyone with new innovative ideas.
September 7, 2013 at 11:03 pm #272
- This reply was modified 8 years, 1 month ago by Dan S.
Im up to about 2600ml so far. I am pretty sure its helping.
My issues are complicated, however. I think i have a combination of dysbiosis (from years of taking various antibiotics), and PR infection.the symptoms that i think are from PR are at a very low level. The PR might even be gone at this point, because i am not presently taking antibiotics And my condition is pretty stable, though not normalized. i believe that my present symptoms are from dysbiosis. Im working on a few fixes for that and will have an update at some point in the next couple months.August 9, 2013 at 9:30 pm #256
Actually I think I will write up some instructions on how to do bloodletting and publish it. I can’t do that now because I am out of town until next week.
I removed another 600ml and still have no sign of anemia. So that’s about 2000ml in the last 5 weeks.
dAugust 9, 2013 at 9:20 pm #254
Yes I have thoughts on that. I do think that consuming iron can have an immediate effect on the infection. Iron is rapidly absorbed, and appears in blood serum in less than an hour after eating. This is why iron testing (testing for serum iron) requires fasting. And iron is almost certainly the one nutrient critically lacking for PR growth. So once pr gets iron, it starts doing its thing immediately.
<div>Look into phytate for iron binding, and bloodletting for rapid,iron reduction.</div>
<div>Lets talk more about phytate later.</div>
August 9, 2013 at 9:18 pm #253
- This reply was modified 8 years, 2 months ago by Dan S.
Whoops I thought this website had pm functionality.
Email me at dodanimal at gmail co